The main challenge when you take a flight that lands at 2 a.m. is not the sleep you lose. But to ensure that the driver of the cab who picks you up will stay awake and alert through the journey. My strategy remained the same this time too. Greet the driver heartily and after establishing our respective identities, start a conversation about the latest in local politics. Never fails to keep the conversation flowing and eyes open, especially when you are in Kerala. Of course, as always, I had taken care to quickly scan the interior of the cab for words, images or colours that would have indicated if the driver was already aligned to a political thought or a party. Again, as always, I started out with some innocent questions, expected of an ignoramus not tuned into the here and now of the political landscape. This time my plan failed. Or, maybe, he sensed pretty early that I was a mere pup when it came to politics. So, after a short pause that threatened to induce sleep, I latched on to a topic that was making headlines all over. Country gone to drugs?“Isn’t it frightening,” I began. “Small school children getting addicted to drugs. They become rude, violent and don’t hesitate to kill. What is happening to God’s Own Country? The most literate state?” I patted myself for that closing. It was sure to kick off a long conversation. Instead, sitting as I was right next to him, I could discern a change in his expression. Suddenly, he slowed the car down. I looked around to spot a reason. No teashop or public toilet around. All I could see was a signboard that identified the building across the road to be a government school. He was pointing to that school. Then he turned to face me. “My daughter studies there. She is in the eighth standard. My son is also there, three years younger,” he paused. His turned his face away and wiped his face on his sleeve. Was he crying? I remained quiet as we resumed our journey. The silence persisted. Then he spoke, almost in a whisper. “For you, these are just headlines to talk about. For me, this is my life, my family.” There was anger in his voice and sorrow. Then he shared his story in bits and pieces. “This has been going on for a while. Everyone thought it was localized first. That was the excuse our leaders used for a long time. Now, it is too big a fire to hide. “Politicians don’t even bother with justifications and promises any longer. Yes, some of the drug runners get arrested once in a while and it becomes big news. Usually, they are out in a week or two. There is too much money and power at play.” He stopped the car for a tea break. I refused his offer of a cup and waited in the car for him to return. I was disturbed. It was one thing to read from far away and arrive at righteous opinions about the deplorable state of affairs. It was another to be in the middle of it all and live life on the edge, day after day. He had half a smile on his face when he returned and started the car. I asked him: “So, how do you handle this? How do you protect your children?” Be there, be transparent“My wife I and I make a conscious effort to be not just parents but also good friends to our children. They are free to talk to us about anything. We do not rush to judge them or punish them. Thankfully, they are smart and are doing well in school. We just sit and talk. If my daughter has something to say that is strictly for feminine ears, she opts for a private conversation with her mother. My son is crazy about football, and he would rather discuss that with me, thought I am not a footballer. We have our disagreements, yet we try to keep one another happy.” Where did he get this idea from? Did someone counsel him and his wife? Did they watch some YouTube video? “We have been like this right from the time we married. Our family life never had a man’s side separate from the woman’s. We saw no reason to change our way even after we had children. I do not know if we are doing right or wrong. We just want to keep everything transparent. It is not about right and wrong or good and bad. We just hope that when we discuss everything in the open, we will be able to prevent any serious problem ... or at least nip it in the bud. “Yes, we talk about the drug problem also. They have told us about a few things they have seen on the way to school. Fortunately, their school appears to be safe so far. Maybe because most of the students there come from relatively poor families. Not much money to get there. But there are some teachers in our neighbourhood who work in bigger schools. They tell us they are afraid. It is just a job for them now and they continue only because they cannot possibly get another job here.” We happened to pass a church. He slowed and bowed his head. The same thing happened when we later crossed a temple and a mosque. He was conscious of my gaze and answered my unasked question. Please save your country“You have probably guessed my faith from my name. But honestly, I have lost my faith in humanity. Our only goal now is to divide and exploit. My only plea to God, wherever He is and whatever we call Him, is to help me and my family.”
We were very close to my destination. He had something more to say. “We want our children to study well, find a good job and settle down somewhere outside. Like you, they should be able to speak English and do well to fly from place to place.” I was on the verge of defending myself, but we had already stopped at my spot. So, I let it pass. After I paid him, he asked my permission to contact me once the children finished their school. Maybe I could help them find a job somewhere far away from here? All I could do in response was give him a long hug and walk away. I didn’t want my tears to dilute his hope. The birds were hailing the rising sun with their chorus. As I slowly wheeled my bag along, I tuned into their songs and focused on the gentle light in the horizon. I desperately wanted to be positive. Maybe, just maybe, God would return to reclaim His country and save His people.
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Aspi Shroff was warned to be careful around them as he prepared to interact with the young inmates at the remand home. “There was scorn and rage in some of those faces as they moved past me to occupy their seats,” Aspi remembered. “The unspoken challenge was: you think you can mend us now, old man?” The transformation after Aspi finished his activity was unbelievable. “Some of them were in tears. One of them told me that he was a good person inside. But someone in authority had ordered them never to get married even if they were released. They were bad people because their parents were bad; if they got married, their children would also be bad.” The children were willing to delay lunch (something they always rushed to, given the strict timings at the remand home) just to take one more look at the two mirrors Aspi had used for the activity—one broken, one intact. The broken mirror showed a broken person, while the other mirror proved that the person was whole with wholesome possibilities within. What was broken were the perceptions, one’s own and of others. Possibilities withinThe two-mirror activity is one of the several that the Shroffs use as part of their Possibilities Universal initiative. Their objective is to open up and activate innate possibilities of strength, wisdom and peace in all, through interactive workshops. After graduating from IIT, Mumbai, Aspi had also taken the “usual path” of employment, business, etc. He went on to marry Yasmin who was a teacher. Their urge to do something different, to give back to society, led them to an orphanage. “It was a very unpleasant experience,” Aspi remembered. But they were not ready to give up. Then he chanced upon a small book, Thoughts of Power, written by Swami Vivekananda. “That changed my life. So much ancient wisdom expressed in such simple words.” The book encouraged Aspi to absorb even more wisdom from Indian philosophy, and dive into the illuminating ocean of quantum physics, astrophysics, neuroscience and other fields. Soon, Aspi and Yasmin were conscious of their own possibilities and ready to help others discover their own. Discover positive possibilitiesThey once happened to conduct an activity for patients at a prominent cancer hospital. At the end of it, a young woman declared her intention to stop all treatment as she was sure the cure lay within herself. “The doctors had to persuade her to continue treatment while remaining positive. Last I heard, she had a remission and did indeed finally stop all treatment. While this may be an exception, I do believe that your state of mind has an important role to play when you are fighting to overcome a difficult obstacle in your life,” Aspi said. As an artist, Yasmin was instrumental in introducing the use of puppets as a therapeutic activity. During the activity (usually with children) the puppet dons various masks representing negative emotions. “Each mask changes the appearance of the puppet, but it is only temporary. With just a flip, the masks disappear and you become your true self,” Aspi explained. They were once conducting a street show, when a child ran away with the puppet. He approached a policeman who was standing some distance away. The boy demonstrated the puppet activity to the amazed cop. Later, the cop came back with the boy and the puppet and appreciated the activity. At a college event, most students were fascinated by the two-mirror activity. However, one student chose to walk away abruptly. Aspi and his team were puzzled, but they did not stop him. A year later, the student came back, with another student in tow. “Please show him the mirrors,” he demanded. Later, he explained: “You have no idea what I was going through at that time and how that activity helped me rediscover myself. Now, this friend is going through the same things, and I want the mirrors to help him too.” Celebrate your possibilitiesDuring a session at a hospital, Aspi spotted a bunch of patients sitting some distance away, not at all interested in what was happening around them. “I approached them and showed them a small piece of paper and challenged them to pass their whole body through the paper. They were skeptical but I persisted until they offered some possibilities. At the end of the activity, they were no longer focused on their helplessness but were actually laughing. There was no denying destiny, but at least engaging in some activity helped to ease their pain.” Possibilities Universal exhorts everyone to “celebrate our possibilities through playful interactions, visualization, meditation, and games that fill our hearts, minds and lives with our possibilities.” For nearly three decades, their activities have helped promote different aspects of wellbeing including mental, emotional, social, environmental, economic, and spiritual. More strength to you, Aspi, Yasmin and team! You have serious health issues. On first assessment, the doctor gives you less than 100 days to live. More than 20 surgeries and 10,000 days later, who do you thank for letting you be you, not just alive? Yes, your own attitude matters. Then there is your doctor, the medical team, friends, and close family. If you are very lucky, you will also be grateful you had Nancy on your side. If you have seen the movie, I want to talk and read the books by Arjun Sen, you will know who Nancy is (was, sadly). I had watched the movie before I read his books Raising a Father followed by Unquit Forever: Keep yourself in the game. The latter (the title of which sums up Arjun’s attitude towards life despite a prolonged standoff with death) told me more about Nancy. When Arjun met Nurse Nancy for the first time at the hospital, “I heard her scream, ‘Arjuuuun’ way before I saw her.” Then, she “pulled me into a bear hug.” Then Nancy asked him a question. Did Arjun think of himself as friend and family? She explained: “You wake up with yourself, you are with yourself all day, and you go to bed with yourself. You are your best friend and companion. There is no hiding from that.” “Arjun, in your journey of living your life, you have to learn to trust me now. I know it takes time to build trust, but in our case, just force yourself to start with 100% trust and then see how I live up to that.” Those are Nancy’s words as quoted in Arjun’s book. She asked Arjun to let her into his life so that she could help him. Once Arjun wondered how she managed to connect so deeply with every patient. Nancy replied: “You didn’t come in as a patient. You came in as a human being. Don’t you deserve love, kindness and attention? That’s what I do. I fall in love with every patient every time. Unless you love the person, you cannot care. I have heard others say that one has to love what they do. That does not work for me. How can I love my work? I love people and every patient that walks into my life. I fall in love with them. They deserve the love.” There was a time when Arjun, the consummate marketing man, was considering suicide. Nancy happened to call when he was driving and sensed what he was planning. She said, “Arjun, hear me out clearly. You are a survivor, not a quitter. Your mind will not let you quit. Whatever you are planning, you could fail in it. Do you know what will happen next? You, the branding man, will get defined as the person who failed both in life and death. Is that how you want to be known?” That prompted Arjun to take a U-turn in life and convert the bothersome headwinds into positive tailwinds. Then, one day, Arjun got the news that Nancy was no more. She had taken her own life. Why? Her husband told Arjun: “Nobody knows why it happened. She finished her shift and left quietly. Her phone was turned off. I guess everyone had Nancy. You, all her other patients, doctors, her friends, and us, her family. But Nancy did not feel she had anyone. She must have been hurting badly, suffering all alone.” This is how Arjun sums up his connection with Nancy in his book: “She walked into my life, ready to rescue me. But she never made me feel rescued. She made me feel like I was still me, but a better version. Unfortunately, our connection was only about me. She knew everything about me and how to help me get back in life, not just live but run in life. I wish at least one more time I was standing in front of her, with open arms and calling her name, ‘Naannnncyyyyyyyy!!!!’ and inviting her into a big hug.” Even if you have seen the movie, do read Arjun Sen’s book, Unquit Forever: Keep yourself in the game. It will take you deeper into his life, and the lives of those who made his life a marathon he successfully started and finished—including Nancy. Are you fortunate enough to know a Nancy who loves the people under her care beyond the clock and duty? And if you do, do you really, really know her to encourage her to live on, love on? Text based on the book, Unquit Forever: Keep yourself in the game, written by Arjun Sen and published by Evincepub Publishing, Kindle Edition. Image from the movie I want to talk, directed by Shoojit Sircar, on Prime Video. When the doctor was first describing her cancer, Katie Doble, 32, stopped listening for some time. Because she had a decision to make. Should she be planning her wedding or her funeral? Her boyfriend had proposed to her just ten days earlier. Katie went on to get married. She also prepared for her funeral but, thankfully, that must wait. Her first symptom had appeared in May 2013—"a strange vertical black bar swimming through her field of vision”. It was diagnosed as uveal melanoma, a cancer of the eye. The first line of treatment involved a “radiation-emitting metal disk placed in the back of her left eye”. As feared, that led to her losing vision in her left eye. On the positive side, her doctor said the chance of her cancer spreading was less than 2 percent. In April 2014, an ultrasound found no signs of metastasis. Seven months later, just after Katie’s engagement, new scans revealed that her liver now had a dozen lesions. Like most afflicted with the deadly C, Katie was anxious to immediately start the treatment the physician had suggested, the one that would have given her some 16 months to live. Fortunately, she had a rare advantage. Her father was a doctor, who was already exploring more promising options in the stage of clinical trials. On his advice, she refused the treatment and entered a trial at Memorial Sloan Kettering Cancer Center, New York. The trials beginFive months into the trial, her tumors had grown. She was moved to a second arm of the trial that added a second medication to the regimen. The side effects of the combination “kicked my ass”. But she braved it. Determined to overthrow cancer as the ruler of her life, she went skydiving. As she floated down, she tasted the salt from her “happy tears”. She had to exit the trial because the tumors continued to grow even after two months on the combination therapy. Then she joined a second clinical trial at UCHealth, Colorado in September 2015. That too she had to leave after one treatment on account of gastrointestinal complications. Given that it is not easy to access a clinical trial, and the heavy costs involved (estimated at $600 a month in 2015), most cancer patients hardly get to join one. Katie was already a unique case having participated in two. Over to microspheresIn November 2015, she opted for an FDA-approved treatment of radio embolization. Thirty million tiny radioactive beads called microspheres were injected into the blood vessels supplying the tumors in the right lobe of her liver. It worked! The tumors stopped growing and some even shrunk. Heartened by this, Katie took a break to focus on building a house, “as one does when you’re trying not to die.” She had outlived her doctor’s first dire prediction, but the tumors were thriving in the untreated left lobe of her liver. So, she joined a third clinical trial, again at UCHealth. That trial too went on to fail. In September 2016, they repeated the microsphere treatment, this time for the left lobe. The cancer gradually stopped growing. One morning in May 2018, she stumbled out of bed struggling for her balance. A brain MRI revealed that the cancer had now spread to her brain. Gamma Knife radiosurgery eliminated the tumor. However, her liver tumors were growing again. Going by a study published in 2019, “the four-year survival rate for Stage 4 uveal melanoma patients is only about 2 percent.” By now, Katie had taken part in three clinical trials and also received three additional treatments. Yet three or four tumors persisted. Arming the immune systemIn July 2020, Katie started her fourth clinical trial at the University of Pittsburgh Medical Center. Dr Udai Kammula, the doctor leading the trial, had been after uveal melanoma for almost a decade, because it is “so devilishly difficult to fight”. Dr Kammula injected her with 111 billion new T cells, after first wiping our Katie’s own immune system. A month after the procedure all tumors were gone or shrinking. The one which did not was surgically removed. Finally, Katie was cancer free. Today, she works as a recruiter and gives talks to pharmaceutical and biotechnology companies and nonprofit cancer organizations. She lifts weights and rides her exercise bike when she and Nick are not enjoying golfing, biking and hiking. “Had I made the choice to not get a second opinion, I would be dead,” Katie said. What if Katie were in India?How would Katie have fared, if she were in India? Is it possible for a patient in India, handed a grim prognosis, to take a chance with an experimental remedy that is under clinical trial? Dr Santam Chakraborty, Senior Consultant at Tata Medical Center, Kolkata, co-author of a paper on “Geographic disparities in access to cancer clinical trials in India” is not very optimistic. The best person to inform a cancer patient about a clinical trial possibility is their oncologist. However, as India does not have a very integrated healthcare system, the oncologist is most likely to offer trials running in the hospital they are attached to. According to Dr Chakraborty, given the limitations of the clinical trial registry in India, “finding a clinical trial which is appropriate for the patient is a difficult endeavor for the oncologist.” Serious limitationsIn the US and Europe, an efficient, integrated healthcare system makes healthcare records available to all centers. In India, if a patient undergoing treatment in Hospital A wants to undergo a trial on in Hospital B, they will have to undergo a full workup and could be turned away at the end of it for failing to fulfil the eligibility criteria. The patient could have avoided the hassles and the cost of transfer if the data were easily accessible to Hospital B from the records of Hospital A. There is also the larger problem that in India, as yet, “the clinical trial scenario is not geared towards providing really cutting-edge solutions.” In advanced countries, a new therapy is researched for decades in a laboratory before it becomes eligible for evaluation in a patient. In India, clinical trials are usually run with products already evaluated in another country. A pharmaceutical company may evince interest if and only if it is sure that there will be a market for the drug in India. Clinical trials in India mostly focus on finding new uses of existing treatments or evaluating efficacy of treatments that have been evaluated in the west or finding ways to make the treatment more affordable. This is in stark contrast to the scene, say in the USA, where a novel innovation could be on trial. “Even if I were aware that a trial very relevant to my patient is being run in an institution like Memorial Sloan Kettering Cancer Center,” Dr Chakraborty said, “I can offer that to my patient here only if the same trial is being conducted at a center in India.” Most early Phase I trials done in India are for “me-too molecules”, meaning medication already established outside. It is mandatory for every clinical trial to be registered with Clinical Trials Registry of India (CTRI). “As a patient, I can participate in a trial if I fulfil all the eligibility criteria, provide my consent and my physician is an investigator in the trial,” Dr Chakraborty pointed out. Katie shares to helpWhether in India, the US or elsewhere, there is no telling if every person who enters a trial will be blessed with a positive outcome like Katie was after all her trials. While everyone’s outcome may be unique, Katie has been sharing her experience with all. “I gave my first talk in 2017, giving an acceptance speech for The Courage Award from the Melanoma Research Foundation. That’s when I realized how much I loved sharing my story. It gives people hope. It now feels like it’s what I’m called to do. It’s my way of paying it forward and saying thank you to all of the people who have helped me along this journey. I don’t want to hoard the wisdom I’ve gained from this horrible experience and expect other people to just figure it out on their own. It’s really, really hard to navigate this. If I can help just one person and change the course of their treatment for the better, then it’s worth it.” It is never easy for the patient and the caregivers. Who helped Katie pull through it all? "I've always identified both Nick and my Dad as my caregivers. Nick is my moral support. And my big spoon! He takes care of me physically and emotionally. And my Dad is the one who has helped us navigate this journey and understand the decisions we’ve had to make. I designated them both as my medical powers of attorney because I didn’t want either of them to face difficult decisions alone." Do Katie and Nick have a prescription for those who are going through such tough times, so that they can cope better? Yes! Communicate and laugh! "We still manage to laugh our butts off!" Katie added, "one of my lasting side effects from all of my treatments and the abdominal surgery is that it really hurts when I laugh hysterically. So, when I get that keel-over, gut-wrenching laughter, I can’t breathe. And he [Nick] loves it!" How did the bullock cart always come on time to take us to the railway station? Then I was too small to ask and too busy trying to squeeze into a tiny space among the bags and the other members of the family. Nor do I know now; even my mobile can’t tell me. The cart would shake and sway its way for a long time past many miles of trees and farms until we reached the river. The river with clear water flowing past stones and boulders and fish that swam carefree. That’s where we had to get down, cross the river and walk the rest of the way to the station. The elders would get off and carry the bags, stepping confidently from one boulder to another. The whistling of the steam engine would urge us children to run, deliberately stopping once in a while to let the fish nibble at our feet. I look up the name of the that river. Wikipedia finds it for me. “The Kalpathy River, also known as the Kalpathipuzha, is one of the main tributaries of the Bharathapuzha River, the second-longest river in Kerala, south India. “One of the problems faced by the Kalpathipuzha, like most other rivers in Kerala, is illegal sand mining. This has left many pits in the riverbed, which leads to shrub growth. During summer, the river is covered by a green carpet of Water Hyacinth and other shrubs.” I am now in a big busy city. I can see two bridges, extending the road from one bank of another river to the other. Above those is another bridge bearing the metro rail. From where I am, I can see everything, and everyone is in a rush. No one has the time to look at the river, except when you want to fling yet another bag of garbage into it. The water is sluggish and black wherever it is not smothered by thick swathes of water hyacinth. This river used to attract so many birds. They are missing now. Did all the fish die? Right below my window, they are felling more trees so that we can have another road for more people. The river appears to pause and sigh. Fires in cities. Heavy rain in deserts. Lush green growth in Antarctica. There are more roads and more bridges. But we can hardly move because there are too many of us. We build and build. But we get time to live only in vehicles. The rivers now weakly carry the filth we can’t stop generating to the ocean where the mightiest predator is plastic. We can’t go back to yesterday. Perhaps, today, we can stop and look at the river. And look after it? Are we already too late? Is it tomorrow, no, tosorrow already? All images produced by artificial intelligence, which does not have a solution unless real intelligence gets its act together.
The money she tightly held in her hand was not enough for her ticket. Her plea “But that’s all I have, and I must go now,” did not move the guy behind the counter.
Seeing that she was short by just a few rupees, I offered to pay for her ticket online. She watched the whole process with suspicion. I handed her the ticket. She was about to give me the money but hesitated. She walked away a few steps, showed her ticket to a stranger, apparently asking him to confirm that the ticket was indeed for her destination. Then she walked back to me, gave me the money. “I don’t understand these things. So, I have to be careful.” She was apologetic. I was embarrassed. The bus started late. She had a found a seat where she lay curled up, hugging a small bag. I wondered if it would be presumptuous to wake her up and offer her a meal where the bus was scheduled to stop next, after a couple of hours. I must have dozed off. The driver’s loud voice woke me up. “The engine has failed. Please get down. I will stop the next bus. Please ensure it will take you where you want to go.” As I grabbed my backpack, I looked at the old lady. She was up but appeared unsure about getting down. I explained the situation to her. She waited until another passenger confirmed it. Obviously, I was far from winning her confidence. Or, perhaps, life had robbed her of all confidence in others. Now that we were in a different bus, I noticed that she did not sleep for a long time. She kept nodding off but would wake up with a start every now and then to anxiously check where we had reached. She lay down again when we stopped at a major bus station and the driver announced we would resume journey after 30 minutes. After 45 minutes, the driver was back on and started the engine. He revved it like mad, filling the bus with fumes but it refused to move. “Something is wrong. The steering is also faulty. I can’t take any risk. Please board another bus,” the driver announced not bothering to look back at the passengers. There were loud protests and so he consoled us: “You will get any number of buses from here, going wherever you want to go.” So, there we were, in the third bus, with a long distance to cover yet. I could see that she was determined not to sleep now. Maybe because of all the rattling which was worsened by the condition of the road. There were not many passengers, and the conductor was done with issuing and checking tickets. I moved next to him and struck up a conversation. “You think having to change buses twice is a big deal? Just last month, I was in a bus that had passengers who had to change four buses. Imagine, those many breakdowns within 200 kms," he said. “I am not surprised at all,” he continued. “Do you have any idea about the quality of the spare parts we get? They must be paying a huge price, and someone must be pocketing it, but the buses are not getting any benefit.” Before the conversation took a contentious turn, I tried to insert a positive note. “It is a good thing that they are introducing modern electric, air-conditioned buses now.” He laughed. “Electric? Air-conditioned? Do you know the cost of repairing those buses? Those are just not designed to run on our kind of roads. Maybe you can, but do you think people like her can afford those buses?” He pointed to the old lady who was now dozing, seated and swaying. “Now everyone wants a car, that too a large car. The roads are the same. Always damaged and always jammed. Do you think that is progress?” He smirked. As if on cue, the bus hit what might have been large pothole, veered off the road and came to a stop. This time nobody had to tell us to get down. We were all off the bus in a rush. I ensured the lady got down safely. The conductor asked if everyone was safe and unhurt. He got on the phone, trying to find out if and when another bus would come that way. As we waited, some used their lighter bags as umbrellas to shield from the harsh sun. Then I noticed her shuffling away. She settled down in the shade provided by a big hoarding. She used her bag as a pillow and prepared to sleep, unmindful of the stones and the dirt. She looked as if she was quite used to it. Involuntarily, I looked up at the hoarding. It showed the large face of a leader who had won the recent election. The text around congratulated and appreciated all the services rendered by him for the upliftment of the poor. The building is not that old. Yet, the missing lights and rubble all around suggest lack of funds and attention.
The lift stopped at a floor midway, a chair entered the lift, followed by two elderly ladies, one of them standing and walking with great difficulty. “I fell and had this operation,” she explained apologetically. “I just like to go down, sit there for some time and watch the children play.” The man of the house, who opened the door with a hearty welcome, looked to have aged drastically in a few months. A more subdued “Sorry, I forgot you were coming” followed the welcome hugs. His wife was visible through the open door of their bedroom, in a helplessly twisted posture on the wheelchair, with the caretaker combing her hair. It was clear she had not placed the visitor; the same one she used to greet enthusiastically whenever they met during their walks. There was a large cup of tea waiting at the table. The man brought two packets of biscuits. She was wheeled close to the table and her husband. Carefully he broke each biscuit into half, dipped it in the tea and fed her. At one point, she choked and coughed, causing panic all around. Her eyes were bright and steady on the visitors. Do you think she can recognize people? “She can’t talk. Perhaps she can hear. But I think her brain is as sharp as it always was,” he said. Her trembling hand firmly held on to chair handle as if she was afraid of falling from the chair. Her eyes remained steady, almost smiling. He spoke of his major worry. Not the food, that was being delivered regularly, like the medical supplies. “The caretaker is planning to go to her village for two months.” Life was impossible for both of them without the caretaker. “We asked my wife's regular doctor to help us. He suggested we should move to the new old age home he has opened. It was a relief for us when we could move to this small flat thanks to a friend. Now to move from here and spend a whole lot of money every month … we just can’t do it.” They are counting on the caretaker to find a replacement before she leaves. How long will the new person take to get comfortable with their needs? And to provide the constant care she needs through the day? Those are questions best not voiced. Outside the window, a large tree with clusters of white flowers blocks the view of a lively game of volleyball in progress. One of the spectators, or maybe more, would be sitting on a plastic chair. The flourishing trees swaying gently in the breeze, extend all the way up the gentle slope. If you can make it to the balcony, you can also see the sun, relentlessly setting. This was the 15th day after he was rushed to the hospital in a critical condition. Tubes and masks were keeping him alive. “We have already informed the whole family.” They were all coming from near and far. No one mentioned it, but they were coming to be around when the inevitable happened. “The good thing is his will is in place. So, no disputes later,” someone whispered. “Anything about organ donation?” came a hesitant question in response. “How dare you talk like that,” an elder member of the family screamed when she heard that. “We are trying to save him and not cut him to pieces so that someone else can live. We love him. We respect him.” But haven’t the doctors already indicated that his brain is dead, and he is being kept alive? No, nobody dared ask that question aloud. “Cremate me,” he said unexpectedly. He was old but not that old and fairly healthy. And cremation was not the common practice in his religion. “Wait! Donate all that you can, at least all the parts in my body that are working,” he laughed as if it was a joke. “Whatever is left give it to some medical college. Why waste wood or electricity when my body can teach some youngsters,” he laughed louder, though several others in that family gathering were unsure if it was appropriate to laugh. Years later, after he passed on, no one was sure how many lives his death touched. But some who came for the mourning rituals were aghast. “How could you?” That was his wish. “How do we pay our respects now when there is no body?” This is the wheelchair she used. Maybe it can help someone else now. And this walker he never got to use for long though he, more than all of us, were hopeful that he would eventually get back to walking normally or even running. We have sanitized this commode chair though we are not sure if it is okay for someone else to use this. Days or even weeks after someone dear moves on, these are common donations. Because those might help someone. Because no one wants a reminder of a dear departed lying in a corner. Donate lifeWhat is less common is the intention to donate the eyes, the heart, the liver, or any organ that may help someone else live a little longer or help complete a life or two. Donations that can’t be bought from the nearest shop. According to renowned neurosurgeon, Dr Mazda Turel, “There are innumerable reasons for a family to decide in favour of or against donating organs. In India, very few people make their intentions known when they are alive, and hence, it is up to the next of kin to take a call.” The latter makes it tougher. “In some cultures,” Dr Turel writes, “beliefs regarding life, death, and rebirth influence the decision to donate organs. Others believe that the body should not be harmed after death. In many societies, death is surrounded by rituals and taboos. There are superstitions that suggest tampering with the body can invite bad luck or prevent the soul from resting in peace.” Born, must dieLet us for a minute, shed our emotions and superstitions. Let us examine our body. It is a marvelous machine. However, it does not take long to decay and stink once it runs out of the fuel of life. The process of decomposition is said to start four minutes after death. Without blood circulation and respiration, there is excess carbon dioxide formation leading to an acidic environment. Enzymes start eating the cells from inside out. Released gases cause bloating and putrefaction (yes, that unmistakable smell of death). Finally, everything soft (organs, muscles, and skin) becomes liquid, leaving only the skeleton. A natural process, no doubt. That apart, are the final rituals the best way you would like to give respect to your own body or that of a loved one? Will your endInstead, if you will in advance that your organs be donated (or your family did so before it was too late) you could save up to eight lives, help two people see, heal up to 75 burn and wound victims or help someone restore their hand or face. It is a difficult decision for anyone, except you. Because, you have every legal, moral, and ethical right to decide what will happen to your body after you are no more. You are in no way changing the ordained course of your life by documenting this decision and letting your people know. And when this is known, it becomes easier to make transplants within a viable time frame: heart and lungs within four to six hours, liver within eight to twelve hours, kidneys within a day or two, and so on. Your life will end. No one can change that. But what you can change is how, after that end, your organs could help others begin a new life. Thanks to you. References:
https://mazdaturel.com/the-surgical-donor/ https://www.donoralliance.org/newsroom/donation-essentials/what-is-the-time-frame-for-transplanting-organs/ https://my.clevelandclinic.org/health/treatments/11750-organ-donation-and-transplantation https://www.aftermath.com/content/human-decomposition/ Do you love your credit card? I did! Way back then it helped me buy immediate requirements for the house that I could hardly pay the rent for. Back then when I needed to travel to earn a living, it got me tickets at a discount. Decades after we had started living together, some weeks ago, I found a few strange charges. Because I was not travelling as frequently as I used to, I was being penalized for not utilizing my benefits accruing from other purchases. Up the levels of indifferenceAs I could not figure it out, I wrote to them. When they responded, I found myself climbing the hierarchy of customer care with each response. Every email ran into some 15 paragraphs (yes, I counted). After the third or fourth response, I became more adept at quickly spotting that single short sentence that directly answered my question or addressed my issue. The card was to expire soon. Heart-breaking as it was, I suggested they ought not to bother renewing the card. That was not possible, or so suggested a response. Nothing to do with the silly heart but some technical issue. Then they told me the charges had been reversed. I did not want to strain my heart further by asking why they had bothered to charge me in the first place. So, half-way into my first month after that card expired, I called. Probably, I expected tearful cheers when I told them I wanted to renew. The voice was matter of fact: “We sent your card last month. But your address could not be located. So, it came back. Do you want us to send it again?” Huh? I did not think the voice really bothered that how far back my association with that card went. It was the immediate transaction that was on the screen. A couple of days later, the courier messaged the card was on the way. All’s well, that ends well? Ha! The courier guy is known. Did you ever attempt delivering the same card before and no one was at home? No, he said. This was the first time he was delivering this card. Surely, the bank must know better? They were sure the card went back. “Banks, cards,” he mysteriously smirked. Here, take twoThe reason behind the smirk became clearer the following week, when I got another message. My card was on the way and delivery would be attempted on that very day. What? Again?
Went through the steps to establish my identity with customer care yet again. Yes, I had accepted and activated the card precisely seven days ago. No, they never sent a second card. Soon, the courier friend is at the door again, calmly entering the code to cancel the delivery. “You are fortunate. You got only two cards. The next address I am going to I will be delivering the tenth card. Do you know we get paid less than 10 rupees for every card we deliver? And we are fined 5,000 if we fail to deliver for whatever reason?” As he politely refused the glass of water I offered that hot afternoon and walked away, I did not even bother to understand what was happening. My intelligence was too real and ancient for that. Are we using so much of coded intelligence that our native thinking is getting artificial? Or is the bug in the thinking that I am anything more than the number embedded on the piece of plastic? There was the usual hubbub when we descended the last slope from the tranquil tourist spot to the parking area. Vendors selling everything from mementoes to snacks were yelling in the hope of attracting at least a few customers before everyone went off in their vehicles.
Then came the sound of an old-style bus horn. No, it was not from the parking lot. It was from a small makeshift shop selling tender coconuts. Suddenly, we were all thirsty and hungry. As we went closer, he welcomed us all with a big smile and put aside the horn. Interesting, I thought. Instead of letting his own voice get lost in the cacophony of all the shouting from the other vendors, he was trying something different. I was about to compliment him for that when he used his fingers to answer my question about the price per coconut. He wrote it on his palm and then gestured—he could not hear or speak. After that it was a smooth conversation. Before cutting each coconut he would ask—just water or you prefer some malai also? The first sip of the coconut water instantly took me back in time, when my family used to have a large coconut plantation. When city folks like me were visiting, someone would climb a palm and bring down tender coconuts. The water that I had just tasted had the unforgettable tang of very fresh coconut. He gestured to me that every morning he climbed up a few palms in the vicinity and got fresh coconuts. There were still four coconut halves with the glistening white meat waiting to be picked up and eaten when there was a sudden downpour. The bus was parked a little distance away and everyone was eager to make a dash for it. Skip what was left and go? Suddenly, he pulled out a clean bag to put the meat in. I asked him to pack it. He refused. “My hands are not clean, you do it” he indicated. As the bus moved away, I wondered. Did I miss taking his photo? A selfie? Should I have got more information? It would have made such a wonderful post and garnered so many “likes”. Then the rain stopped as suddenly as it had begun. The few wisps of remaining clouds accentuated the blue that vied with the green all around to fill one’s eyes and heart. That was it. I realised the meeting with him was best stored in the heart, where it would stay far longer than on any screen. |
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March 2025
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